Friday, July 18, 2008

a first time visit to false positive land!

Hello All,

First, let me say I am overjoyed to be here and I love each and everyone of you. My prayers and hopes for each of us are to be well.

53 years ago yesterday, Walt Disney opened the front gate at Disneyland with the wonderful words….”To all who come to this happy place; Welcome!”

Unlike Disneyland, I have ventured into an upside-down roller coaster ride that is new to me and well, just not at all to my liking. I had heard the term of course and I had listened as several of you had mentioned it in meetings or in conservation. There is nothing nice about it and nothing that makes me at ease with it. Some good news; I am cancer free!

The debate is still on going within my mind as to how to feel about what the last several weeks have been to me. That is a matter for me and me alone in the end to make peace with any demons I may have about this little side trip to a very uncomfortable little amusement park know as a false positive. Damn, do the surprises, no matter how known intellectually, ever stop!(?)

After another MRI done in the underground vault (which I have now re-labeled as the bat cave) know as Mayo Clinic Scottsdale Campus; and a much better show and tell period with Dr. Hinni (read as last weeks visit being a bad hair day for us both)…..I am healing. Thank God. Healing hurts, healing does do strange things to ones body, healing is a lot of uncomfortable processes through time. BUT; I am healing.

Turns out that some of what showed as ‘Hot” (love that technical medical lingo) spots on the Tucson version of an MRI/ PETScan where in fact, areas in my throat and on my tongue which had been poked; prodded; folded; stapled and or mutilated by Dr. Hinni and his staff during there 4 hour pleasure cruise inside my body last November. He claimed it all as per his notes and best recollection of said stated procedure. Bottom line…..Steve, relax, your OK and doing remarkable. Per him….an amazing heal. I did have to come clean with him as to the source of my weight gain to which he said.. ”I do not care, just keep doing what your doing”. Yes, a new source of health foods- the ice cream sandwich; I see marketing potential here.

I have learned a lesson my friends, well several but two which are germane to this visit to false positive land; and they are:

1- Take each new revelation as it comes.
2- Never give up on the ability to be amazed at what the body can and does do.

I am very, very happy this morning. I am also wiser (I hope) when it comes to what each new event MAY or MAY NOT mean and hopefully better able to react to it in a dignified manner which makes us all proud. I can not thank you enough for the prayers, the support and the words of wisdom and experience each of you share with me.

BY THE WAY, skip any desire of ever going to false positive land. The place is dingy and the rides are dank and dreary. Go to Disneyland or to a national park and camp or to the beach or where every your desires dictate. I would recommend into the arms of family and friends. Yes, Cancer Sucks…False Positive Land blows chunks.

I am glad to be here people, I will beat this damn thing and I will remain. God’s good fortune on each of you.

Be strong and be there for each other.

Wednesday, July 16, 2008

Russian Space Army

i am not sure why i enjoy the entire history revised/steampunk/etc. movements out there. seems like a combination of 'we have a chip on our shoulders; you blow' and 'we have talent; listen'. all i can say is be careful of the message of some of these nazi zombies are cool things but i have to say that the talent and the wish of a return to the victorian era is a desire i do share.

The band is called Kozaks of Metallishtan and listen to them and there message at your own risk!

enjoy the video:

zoe in toronto

Friday, June 20, 2008

....she's just not ready to let us go....

There are about a million tales I would rather relate with you all, than this. However, as all of you have become my friends and loved ones, I must yet again share with you; the news.

It’s funny really, my body has told me every step of this journey what to expect really. I can not really call it pain, although that is a part. There is just a feeling of a tremendous battle taking place within my body. Not a battle of good and evil nor right and wrong. It is just simply the rumbling, the strain, the clanking and the haze of some unseen darkness that shrouds my insides and is attempting to lay waste to everything within me. I feel its fingers as they simply just invade the corners and crevices that never should be felt. I can feel its inexhaustible strength and the talons grip and grapple and twist and tug at me. Damn it.

The cancer is back. This time, it is in two locations. Once again it is in my right lymph node and there is now a spot on the left side on my throat/tongue as well. Strange words to my ear in the ‘final report’; that cracks me up…. ’final report.’ Like some nasty horrible act of inhumanity from the past. Words like malignant mass lateral; suspected lesion; left jugulodigastric chain and my favorite…. Right hypopharyngeal wall. Here is another really fun thing to talk about with your doctor: and I quote…”there is a markedly increased uptake in the lesion suspected lateral….” Damn it; like some really nightmarish porno movie –vs. - a really bad 50’s sci-fi novel taking place within my very own throat.

For those of you old and or maybe young enough to remember Frank Zappa: “why does it hurt when I eat?”

I sit here this morning and I am once again waiting for the fine folks at the Mayo Clinic to come to terms with the evil dark empire of my insurance. I await going up next week and having the pleasure of selecting a date for my surgery; yet again.

Please keep me and each outer in your thoughts, your prayers and in your smiles. I have family, but sometimes I need each of you to lean on. Thank you, each one of you for being a supportive hand in battle. I hug you all and ask that you share my tears. I will continue to fight, but I would be lying to you if I said I enjoyed it.

George Clooney playing Capt. Billy Tyne in the Perfect Storm: “she’s just not ready to let us go.”

Be strong everyone.

Wednesday, June 18, 2008

honest words

“The truth is: there is no such thing as good or evil, just attractiveness or unattractiveness.”
- Jason Thompson,explaining what he's learned from manga

Sunday, June 15, 2008

happy father's day...





to my three wonderful boys. i am proud of each of them for their ability to be true fathers and not just observers. i am blessed in that my grandchildren are being looked over by such fine men. thank you guys; each one of you. they are all three, strong men!